We are Alex, The Leukodystrophy Charity (Alex TLC).
Alex TLC is a trusted and experienced organisation offering support & information for all those affected by a genetic leukodystrophy.
Leukodystrophies are rare, genetic disorders primarily affecting the white matter of the central nervous system (i.e. the brain or spinal cord). The majority of leukodystrophies are degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence, inability to swallow and loss of cognitive skills. In some cases, they may cause death.
Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy (the most common of the leukodystrophies), the charity was established in 2004. Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.